It feels strange to be logging a journal entry all these years later.
A decade has passed since the day I received my bone marrow infusion.
I remember that day so clearly, though I didn't record the details here
in my online journal. The transplant doctor and his team arrived at my
bedside at 1pm,
and the tension in the room was palpable. Prior to that day, Dr. Shephard
had always seemed jovial and carefree, but that day his brow was furrowed
and his demeanor was serious.
Mark was in the room, wearing a mask because he had a cold.
A transplant survivor, Ross, was there providing me with inspiration.
And the hopes, good wishes, and support of all my friends and family were there
too. My walls were covered with photos and cards. My heart was filled with
fear.
The bone marrow was infused into my body through an intravenous line
(technically through a Hickman line which had been surgically installed
weeks earlier). My marrow had been harvested from my pelvic bone a couple of
weeks
earlier, but this was the first time I had seen it. The bag of marrow looked
similar to a regular bag of blood,
but it held my life, my future. In the days leading up to that moment, I
worried about someone dropping my jar of bone marrow, rendering it useless
and ending my life. In my mind, I pictured the marrow having been frozen
in a glass
jar; in fact it had been (smartly) frozen in plastic. I wish someone had told me
that sooner!
As the marrow entered my bloodstream, it became a bit difficult to breathe,
which surprised me. The doctor told me that the preservatives in the marrow
can lead to some temporary side effects. The most disconcerting side
effect I experienced was a drastic drop in my heart rate. It fell into the
30s. I was told this wasn't unexpected. I don't really remember the dozen hours
that followed, other than the fact that a nurse was assigned to my bedside
to closely monitor me until my heart rate returned to normal. I remember
the nurse waking me to take my vitals at 1am, and when she told me my heart rate
was back to normal I was so relieved! I immediately phoned (and woke up!)
Mark as well as my mother. This was the first hurdle I would pass; the
first of many, it would turn out.
I remember the kinds of things I worried about in the hospital. I
thought about the implications of a fire in the hospital. My room was
on an upper floor, and I was attached to an IV/pump machine on wheels
via the
Hickman line that was stitched to my chest. If I had to leave
the building, it wasn't going to be possible to do so using the stairs.
And if I did somehow leave
the building, common germs in the air could be the death of me. My thoughts
during that period can't exactly be characterized as
optimistic.
At the time, it was hard to envision a future. I certainly couldn't imagine
a life 10 years in the future, a life I'm now so lucky to be living!
Today I have been wandering around on the verge of tears, living perhaps
a little bit more in the moment than I normally do. When I think about my
life, family, friends, and career, when I think about the daily comforts
I enjoy and the fact that I really don't want for anything, I feel
so priviliged to be me.
Copyright 2008, All Rights Reserved.
Tuesday February 26, 2008: